adventures with gram Archives - Page 5 of 5 - Inspired & Strong

While Gram has been limited in what she can do and how fast she can go, she has usually been up for an adventure. She goes where we go. When we do something fun or go on an adventure, people always ask, “what did you do with Gram?” We can’t leave her home alone so we take her almost everywhere we go. Our friends know when we come to visit, it’s me, my husband, Gram, and even sometimes the cat.

As you read in “How Did I Get Here“, I have been taking care of Gram for almost five years. In that time, Gram has probably flown on more planes and been on more adventures than she had the previous 91 years of her life. And for that, I am thankful and blessed. Gram goes where we go, and I am sure we probably wear her out, but she just keeps ticking like the Energizer bunny. So strong and inspiring.

Although we know we need a “Break from Gram“, we also know if she goes where we go, she will enjoy it. We all will. Sometimes she takes more coaxing to start the adventure, but almost every time she says thank you and has a huge smile on her face at the end. Since 2016, she has hiked Cooper’s Rock, done shot ski’s in Copper Mountain, sat on the beach in the Outer Banks and Virginia Beach, been on our boat for over 140 hours, sat in between us on the golf cart, and spent hours in the car driving back and forth from Florida to Pennsylvania. Whether our adventures are up and down the East Coast or just a jaunt in the car to the nearest ice cream shop she always seems to have a good time.

Then it happened. This summer, Gram got weaker. It all seemed to have started with a sore on her ankle. Then her right leg was numb so she was getting up several times a night trying to “walk it off.” I was so tired and frustrated. Getting up to walk around on a numb leg just isn’t a good idea. It was then that I started doubting my abilities as a caregiver. Could I continue doing it and keep her safe?

She became more and more wobbly and unsteady. One morning she fell and hit her head. We ended up having to take her to Med Express for stitches. By the time we got there, she didn’t even remember she had fallen.

About a month later, we had five days of respite care (through Hospice), and although we wanted her to go where we went, we also wanted a few days away. Well, when we picked her up 4 days later, she still had the same socks on she went in with. They had her in a hospital gown instead of the clothes I sent with her. Her food was to the side of her bed and completely untouched. She wasn’t up, dressed, packed, or even close to being ready to go home. I was there 30 minutes getting her out of bed, to the restroom, washed up, and into her clothes. Not one person came by. Next, I realized her toothbrush was still in the wrapper. I was LIVID, to say the least.

After that, gram got weaker still. She started having trouble walking even short distances. She started using a walker. Because she had been in the bed for so long, we had to make her walk short distances to try to gain some strength back.

Towards the end of summer, her congestive heart failure started filling her with fluid. She was having a very hard time breathing, and we were scared she wasn’t going to make it. She was so weak, and we were worried we were going to lose her. Hospice was wonderful again, got her some medications, and Gram, the superwoman that she is, nursed her way back to health.

Gram definitely isn’t as strong as she once was and it definitely is getting harder on us as caregivers. She is slower, she is more forgetful, she is weaker, and she is even having trouble standing up. We are so blessed to have had all these wonderful years with Gram, but caregiving is getting harder and harder. She still goes where we go, but it takes a lot more effort and takes a lot more time. She gets worn out more quickly. She needs a wheelchair more often than not. She doesn’t want to go as much anymore either. And we realize it is hard for her and on her body. Sometimes we wonder if we are pushing too hard or expecting too much.

Over the past two months, I have realized that Gram doesn’t really want to get out of bed anymore. Even when we were visiting her daughter and great-grandchildren, she would say “just leave me in bed.” It hit me that she didn’t realize that she was missing time with the kids or her own daughter. Even though she asks about my mom and the kids all the time, she showed little effort in wanting to spend time with them and that made me so sad. I know in her heart she wants to be a part of it all, but in her dementia brain, she could care less.

This realization made us start seriously thinking about getting extra help with Gram. We found a lady who seemed perfect and jumped right in helping Gram, but three days later she quit saying the job was more difficult than she had anticipated. This made us realize that it was time to consider a memory care facility. We do not want to do this by any means, but we can’t take the chance that a caregiver is going to quit on us again, forcing us, and Gram to start over again with another new face in the house . We are also wondering if Gram just wants to sit and do nothing. Does she try so hard to keep moving because she doesn’t want to disappoint us or let us down?

Although I can’t imagine taking her to a facility and dropping her off, we are not confident that we can keep her safe at home. We are so torn. I have been crying on and off for two weeks now. I took her to get her hair done and she could barely make it to the door. We took her to the store, and she could barely get in the car. We took her to sit out by the pool and she tried to get up by herself and fell. We cannot keep our eyes on our 24/7, and we just don’t know what to do. We also know Gram has lived an amazing life, and we want to live ours, too. Does Gram just want to sit in a chair all day? Does she just want to dream of her lost loved ones? Are we pushing her too hard to push herself? We understand that this may be one of the hardest decisions we have to make, and we really don’t want to make. We are scared and nervous and worried about how she will adjust. We are scared, nervous, and worried about how we will adjust. But it appears “life changes” are on our doorstep.

Has anyone had to make this type of decision? What did you do? How did you decide?

In Adventures with Gram

Day After Day

October 6, 2020 8 Comments

The movie, 50 First Dates, was released in 2004 so it has been a while since I have seen it, but I love Drew Barrymore and Adam Sandler. It’s about a woman (Drew Barrymore) who has short term memory loss and a man (Adam Sandler) who falls for her. But every morning she wakes up and doesn’t remember who he is. So, day after day he goes about making her fall in love with him again by repeating the first date.

When I first started living with Gram back in 2016 (“Life Changes“) she was, for the most part, able to take care of herself. She got herself up, dressed, showered, and even made her own breakfast. She read the paper every morning. I knew she had been diagnosed with dementia, and she would repeat questions, but she was doing well.

Since then, her memory and stability have gotten worse. Although she has declined physically and cognitively, she is still able to do a lot. She is able to feed herself (although I make her breakfast and bring her to the table), remember names, remember people and places. Sometimes she will surprise us all when she asks a question about something that happened the day before.

Although I have heard of Dementia and Alzheimer’s patients being mean and physically aggressive, I rarely have had that experience with Gram. She is the sweetest, kindest, and the most wonderful little lady I know (mostly). Even after five years of being diagnosed with Dementia, she still laughs, cries, and knows what she likes and doesn’t like. And if she can hear you or read your lips, she can have a relatively decent conversation.

That being said, although she continues to do pretty well, I feel like I am living the movie 50 First Dates. Day after day, at the kitchen table in Pennsylvania, we hear the story of how she replanted a twig of a tree in the backyard. She always smiles as she annunciates Grandpa saying “Do you REALLY think THAT is going to grow?” Then she smiles and says I said, “Yes, and now look at it!” And I agree, the tree is huge.

Almost every morning at our house in Florida, after breakfast she asks if she can go sit by the pool. Then she will ask if it’s warm enough. Well, 99.9% of the time it is, Gram…we live in Florida 🙂

Almost daily, Gram asks where my husband is or where my mom is. “Where’s Jeffrey?” or “Where’s Mama?” I often hear. When I tell her, she gets a little sad, and can’t believe they are not home with us. She doesn’t understand anymore that my husband has to work and that requires him to be gone at times, and she doesn’t realize that my mom has moved to Virginia and doesn’t live up the street anymore.

She seems to have a handle on breakfast as it’s the same every day. She eats an over-easy egg and a piece of toast with jelly. At dinner is where we can get the most frustrated. She eats the same thing day after day which is mac and cheese, however, it’s the protein that changes. She will usually eat a few bites, but as soon as my husband and I sit down and put that piece of protein on her plate she asks, “What is This?” We tell her then two minutes later, and often after already having tried it, we hear again “what is this?”, and we tell her again. We usually tell her the truth the first few times she asks, but then we sometimes mess with her and tell her it’s mushrooms (because she hates them) or something so far off base of what is actually on her plate. She just looks at us and shakes her head, says ” I don’t think so” and then proceeds to eat the “unknown”. It is sad to see her little mind not know what something is, especially when she asks what Pepsi is because she’s been drinking it her whole life. I just shake my head and think 50 First Dates.

Every time we are in the car and I take her down a back road or she gets into unfamiliar territory she asks “Where are we?” I tell her, but then a few minutes later the same question again. Sometimes even when we pull into her house that she has lived in for 50 years, she will ask, “Who lives here?”

Almost every night when I put her to bed she will ask, “Is this my bedroom? Is this my bed?” and “Where’s Kuma?”. Kuma is the cat. She always needs to know where the cat is. It’s funny, though, because she talks to that cat like the cat is a person. She offers her food, tells her it’s time to get up, tells her it’s time to eat and tells her it’s time for bed. And if Kuma isn’t in the bed waiting for her then it’s the question, “Where’s Kuma?” Like the cat got up and left. After she kisses me good night, blesses herself, and lays down, she always says, “Stacy, thank you for everything”, which in the end makes it all worth it.

So, my life with gram is essentially like 50 First Dates. We have the same conversations day after day, we do a lot of the same things day after day, I answer the same questions day after day, and I make her the same food day after day. Many people think it’s a glamourous life I lead. Granted, I can travel, I can sit by the pool, I can live in two states, I can visit family and yes, I have been blessed to be able to take her with me on many adventures. But the day-to-day is not glamourous and honestly, sometimes it is downright depressing.

Maybe she asks these questions just to make conversation. Maybe she doesn’t know what else to say. Maybe the logical part of her brain isn’t working anymore. I don’t know, but I do try to learn what I can about the disease, and I do try to make the best of the situation. Either way, like Teepa Snow, says you have to try to find the Gems. Celebrate what she can do, can say, and what she can remember. That is what we try to do day after day.

Being a caregiver doesn’t mean your life is over. It doesn’t mean you have to sit at home with your loved one and watch them sleep (and boy does gram like to sleep!). We have discovered that if you are willing to take the wheelchair, pack up the oxygen, bring an extra change of clothes, answer the same questions over and over, and say the right thing to get them in the car, you can still take that loved one with you almost anywhere you go. Yes, you may have to persuade them. You may have to trick them. You may have to pull out all the stops, just like you may do with a three-year-old, but even though it’s more work, in the end, you both get amazing experiences to cherish.

In Adventures with Gram

The Broken Hip

September 1, 2020 1 Comment

It’s all fun and games until someone gets hurt. And that’s exactly what happened. As you read in “Life Changes“, Gram loved playing Bingo and would do so every other Monday. On December 5, 2016, I dropped gram off and then received one of the worst phone calls three hours later. She had fallen on her way out of the bingo hall. It was a rainy, chilly night, and they weren’t sure if she slipped or if her legs just gave out. I raced over to the church parking lot as fast as I could, and I couldn’t believe my eyes. There was sweet gram on the asphalt, covered with blankets, crying, and apologizing. I hoped and prayed she did not have a broken hip, but it did not look good.

After what seemed like an eternity, the ambulance arrived. Gram was so upset and sorry. I kept telling her it wasn’t her fault. We finally got to the hospital and yep, you know it, it was a broken hip. The doctors were great and wasted no time. Surgery was the next day. I didn’t feel comfortable letting Gram stay in the hospital by herself. She would have no idea about insurance or her medications and would have a hard time hearing the nurses and doctors. Plus, she would have no idea what was going on. Thankfully, I have amazing friends and cousins, and they brought me an overnight bag.

My mom arrived from Virginia and all three of us spent a couple of days at the hospital in a wonderful suite. Then, they sent Gram to rehab, and mom returned home to Virginia. After a week in rehab, she wasn’t really getting better and seemed to be losing hope. I decided I didn’t want her to deteriorate as my grandpa did, so I asked if I could take her home.

At first, they were hesitant, but the physical therapist came out to our house for a trial run, and Gram started zipping around the house with her walker. We decided it definitely would be better for her to be at home, but one of the stipulations was that I had to be with her 24/7. 24/7 is very overwhelming, especially since she was fairly independent up until that point. But I felt I needed to make the sacrifice.

Back at Home. It’s really hard to take care of someone who has dementia and a broken hip. There were certain movements she wasn’t supposed to do because the hip could pop out. I did my best to keep her on track. She couldn’t do a whole lot on her own so she became more and more dependent on me. I was making her breakfast, helping her get dressed, and helping her shower. I did sneak out to the gym in the morning, which was my alone time, my social time and my let my frustrations out time. Because I needed that hour a day, I woke up early so I would be back before she decided to get out of bed. I did what I had to do to make it happen, to keep myself sane and our relationship healthy.

Lonely Christmas. By Christmas🎄, she was walking around the house like a rock star with her walker, but I wasn’t sure if an eight-hour car ride to Virginia would be good for her. We decided not to travel and had a nice, quiet Polish Wigilia by ourselves. It was a very emotional Christmas because we weren’t able to spend it with our family, and it was our first Christmas without Gramps. It’s amazing the little things you come to appreciate as time goes by and how much you learn to appreciate your family and the time spent with them.

Although she was weak at times, I couldn’t believe how well she was recovering from the broken hip. She was walking around the house with her walker. She would take little rides with me when it was nice out. I talked her into going out to dinner a few times and a month later she was back at the bingo hall! Not too shabby for a 92-year-old.

But by February 2017, Gram and I were feeling pretty down. We were around each other constantly. She was getting stronger and able to do more, but she wasn’t fixing herself breakfast and didn’t seem motivated to do much. My life was changing as she became more and more dependent on me.

A Bright Idea. One morning, Gram mentioned going to her condo in Fort Myers, Florida. Needless to say, it sounded like a fabulous idea!! It was cold and snowy in Pennsylvania, and we were both ready for some sunshine! We also were in need of some family time. We packed our bags, loaded up the cat in the car, and headed south. Not knowing that soon again I would be experiencing more life changes.

In Family

How Did I Get Here?

August 8, 2020 No Comments

So who am I? How did I get here? And why am I writing a blog?

WHO AM I?

I am from a tiny town in Northwestern Pennsylvania. I went to a small college and graduated with an education degree. Then, I moved to California to teach first grade. Six months later, I moved to Richmond, Virginia. There, I taught special education for eight years, earned my Master’s degree, and became a special education coordinator for another eight years.

Something happened in 2015, and I just wanted out. I needed a change of pace. A friend recommended the Greenheart Travel program, and I decided to go to Thailand to teach English as a second language. I was super excited. I had a friend to travel with and tons of opportunities to meet others.

After months of debate and discussion, I left a 16-year career in education where I was making $70,000 a year and had 14 weeks of sick time built up. I wasn’t sure how things would turn out, and many people thought I was making the wrong decision, but I decided to take a leap of faith and jump. Looking back now, I can’t be more thankful that I did.

In the fall of 2015, I left for what would end up being an amazing adventure. Because I am a Travel Junkie, I contacted friends I had around Europe and visited eight countries along the way (Germany, Switzerland, Finland, Sweden, Italy, The Netherlands, France, and Spain).

Then, my friend Katherine and I headed to Thailand where we would end up spending two months working with children and exploring the Thai culture. I remember when we arrived in Bangkok, we met about 30 people who were also there for training. We had a couple of days in Bangkok where we visited Thai markets, ate some interesting foods, and went to a Thai cooking class. Then, we headed to Hua Hin where we had classroom activities. We learned a bit of the Thai language and that was my first introduction to Sabai Sabai [pron. suh-BYE suh-BYE] which means “no worries, no problem, just relax”. After three weeks of training, Katherine and I were placed at an international school. We were only there for three weeks and then it was Christmas break and we had a month off, so we traveled around Thailand a bit and then I decided to go home to Virginia for Christmas.

HOW DID I GET HERE?

It was Christmas 2015. Our whole family was together including Grandma and Grandpa. We had a great time making pierogies as per our (Polish) Christmas tradition but, I also made mango sticky rice, which was my new favorite dessert from Thailand. We had a wonderful time until Christmas evening when my 90-year-old grandfather ended up in the hospital. He had fluid built up around his lungs and was having trouble breathing. He was in the hospital for several days. I wasn’t sure what would happen, but I felt I needed to stay in the United States and be with him and my family. Therefore, I canceled my trip back to Thailand. After a week in the hospital, they sent him to rehab.

About a month later, in February 2016, our family was at a loss. He wasn’t getting better, he seemed to have lost all hope and wasn’t trying. After several discussions about different options, it was decided I would drive my grandparents home to Pennsylvania. We arranged for Hospice care so that I would have some help. Even though physically he had deteriorated, mentally, he had every desire in the world to go to Fort Myers, Florida to their winter condo like they did every year, but Gram won out, and we headed north.

He was a large, stubborn man and he was very upset that we went north instead of south, but we made it. He was very weak and couldn’t even walk to the door. His heart failure won out because we weren’t even home a week and the good Lord called him to heaven. My grandparents were together just two weeks shy of 66 years. What an inspiring marriage!

Since I didn’t have a job and my house in Virginia was rented for the year, I decided to stay and take care of my grandmother. She needed company, and I needed a place to live. I didn’t know if my grandmother would live for two days, two weeks, or two months without my grandfather, but I decided to stay.

WHY AM I WRITING THIS BLOG?

This blog is a collection of stories from September 2015 to the present day. It is meant to make you want to live life to the fullest, laugh often, love with your whole heart, and constantly learn to be better. It is to share the stories of my Adventures with Gram and my family. It is to show you to never give up on your dreams by sharing my travel adventures, my fitness journey, and my journey in finding love. Hopefully, some of my stories will inspire you to take chances that you’re too scared to take right now. Hopefully, it will inspire you to start a fitness journey of your own. It may inspire you to go see your grandparents or parents. Whatever it is, I hope this blog at least warms your heart and makes you smile.